OK, obviously I'm not the best at writing a post daily. Life happens and the past couple of weeks have been super busy and I'm now exhausted! We've had some play dates, we sorted lots of garage sale stuff, had 2 days of garage sale at our house. We only hosted, it benefited a ministry called Legacy Closet which helps foster families with beds, bedding, clothes, shoes, car seats, and pretty much anything else they need when the get a placement. I've been volunteering with them and they are awesome ladies who are foster/adoptive moms themselves, they truly are amazing! We've also sold my husband's truck and bought a new (to us) Jeep. We celebrated Memorial day at my parents house with lots of great food and great company. We've celebrated my dad's birthday. I've gone to a homeschool used book fair with some great friends. It's been fun, but I'm hoping this coming week is a little more laid back and I can get my house back in order.
Tomorrow will be full of phone calls. A call to set up well child appointments for my 2 girls, a call to set up dentist appointments, a call to our Rheumatologist at Scottish Rite, and I feel like I'm forgetting about something else. I need to call the Rheumatologist to find out if we need to start physical therapy or if they want to see her sooner than July. Molly will no longer able to straighten her right knee at all, this was the first joint to start swelling. I tried stretching it out and gently pulling it straight and she started screaming. :( It breaks my heart to see her in pain. I will also need a new prescription for the Methotrexate. I have one week left in the bottle I have. The last dose I gave her I didn't bruise her leg, so I think we're getting the hang of this new normal. We also just finished another fever episode. It started on Tuesday night and yesterday, Saturday, was the last day of fever. It was more severe than the last one, her fever did get up to 105 several times, but came down quickly with Tylenol, and was less severe than they were before the diagnosis. She still takes Naproxen twice a day and I think it really helps with the fevers since it's an anti-inflammatory. I have noticed that during a fever episode her joints really hurt and bother her. She refuses to walk most of the time during her fever episodes and wakes up frequently still saying "owie". She doesn't eat much, so she doesn't have a lot of energy but she doesn't want to sleep either. It's a vicious cycle of a hungry, uncomfortable, sleep deprived toddler....it doesn't make for a very pleasant household those weeks, but we manage and my other 2 kids are so compassionate and do what they can to try and entertain her or bring her things to help her (and me). Those 2 older kids of mine, Will and Caroline, truly are amazing and God designed them to be Molly's big brother and sister.
Until next time...I ask that you pray for peace and understanding for us as we still travel through diagnosis and treatments and possible physical therapy. I also ask you to pray for our pediatrician who lost her son to suicide. It's a tragic situation but I know God is holding her and her family in His hands, helping them through this struggle. I also ask that you pray for the Eynon family, the father was killed in a car accident that also injured 3 of his children. The little boy is fighting for his life on life support. The mom and another daughter were not in the car. Our whole community was touched by this man and his family, I did not know them personally but so many people I know did and talked about what an amazing chiropractor and Godly man he was. One last prayer request...a sweet little girl we know, Kassidee, was transferred to Children's Hospital in Dallas. She's a sick little girl but they're not sure what's going on. Pray for peace and understanding for each of these families dealing with tough situations. God has a plan for each one.
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