I think we're headed back to some bad days in the near future. Molly has been clingy and crabby. I have a good feeling that we're headed to some bad days, maybe a fever episode. She doesn't want to play, she only wants to be held and cuddled (unless she's jumping on the sofa...which she's not allowed to do). She's been having a hard time sleeping. She hasn't been eating much. These are all things I've come to recognize happen just before a fever episode. She should be due to have an episode in about week, so we'll wait and see. In the meantime, I'll pray that she doesn't have an episode and if she does that it will be mild and easily controlled. I'm also praying that if she does have a fever episode it doesn't cause a setback or additional joints to become inflamed. So, I ask that you pray for us. She's been favoring her right leg again, her right knee was the first joint that was affected and what started this whole snowball. That's what I feel like the last 6 weeks or so have been, a snowball that started small and started rolling down a mountain.
On another note, we now have successfully given 2 Methotrexate injections at home. Well....I did leave a bruise both times. :( I feel really bad about it, but I think I hesitated each time and I think she moved some. Let me say...it's really hard to give an injection to a wiggly almost 19 month old. My husband holds her on his lap while I give her injection, I feel like we need 2 more people to hold her down, LOL. I have even more respect for all of the nurses out there who do this on a daily basis, they truly are awesome! I am very thankful she gets over it pretty quickly and still wants me to comfort her, so she doesn't hate me. We haven't seen any side effects from it yet, but I assume as it builds up in her system over the next few months that we may see some of them. She also takes a folic acid tablet each day that she doesn't get the injection. The whole family enjoys this because it means after dinner we all get ice cream! We have to crush the tablet and feed it to her on some type of food. We choose ice cream because who doesn't love ice cream!! Our other 2 kids are loving it and so is Molly. I have to tell a quick story about Will. He truly is the best big brother and I believe God had picked him to be Molly's big brother, he is so caring and sweet. Tonight after dinner we got the ice cream ready and put her special "sprinkles" on it, I started to feed it to her and she said "no, no, no". I tried to let her feed it to herself and she said "no, no,no". We're definitely headed towards the terrible two's, LOL. Will came over and sat on the floor and started telling her "you need to eat your ice cream, see like me. You can do it! Come on Molly, you need to eat it!!" It melts my heart how much he loves his sisters. She did eventually eat her ice cream, giggling at her brother the whole time, they really do have the best relationship. She also still takes Naproxen twice daily, she takes that with no issues at all. I don't even have to hold her, she sits on the counter and takes it willingly. She's learning to cope and so are the rest of us.
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